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Jul 16

Written by: CBR1000gRRl
7/16/2009 8:57 PM 

So round 1 went to the cancer, but with the help of chemo I'm hoping Dad's going to rally back to take round 2.  He's still not feeling very well, of course, but after getting the IV fluids three days in a row he's got a bit of an appetite and seems to be in a little bit better spirits.  We had a little mix-up this morning with Menlo Park (again) in getting him to Palo Alto for his fluids this morning, but I kept on top of it and he got there in time and still made his radiation appointment later in the day.  I spent my "lunch" waiting for him in front of the hospital, so only got to wheel him in to the AIC (ambulatory infusion center) and hang with him for about 5 minutes before I had to leave again.  I ran out again in between meetings and picked up another egg crate seat cushion for him (that cancer in the hip bones with all the sitting is muy uncomfortable).  Now he has one on his bed at Menlo Park and another to take with him for treatments and to use on his wheelchair

I didn't get to spend too much time with him today, because I had some work to catch up on from the last couple days, but at around 5 I picked up a small bowl of DQ and headed over.  We split the ice cream and I left some Little Debbie swiss rolls there for him (thanks for the suggestion Robin!) in case he felt like another snack later.  I stayed for about 30 mins before coming back over to the Fisher House to finish working for the day.  Before leaving though, I set him up with an audio book (Odd Hours).  That he asked for that is a good sign - he hasn't felt up to much more than watching TV and sleeping most of the time I've been here.

Tomorrow and Monday will be more radiation, and then Tuesday will be chemo (Gemcitabine only, I think), then he'll get a 2 week break before getting another round of chemo. 

For anyone trying to get in touch with him - he hasn't been deliberately ignoring anyone, but he just doesn't feel up to talking on the phone much.  His voice is breathy and somewhat slurred, so he has to repeat himself a lot, and his ears are stopped up so it's hard for him to hear as well.  If there's anything anyone would like to tell him, please do not hesitate to let me know, and I will be sure he gets the message when I see him.

G'nite!

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6 comment(s) so far...

Re: The fight is on...

Please tell him Becky sends love. I have his burning man bag he wanted me to do some stitching on. I've cleaned it a little, some parts won't get any cleaner and maybe they shouldn't. :) Where do I send it? It hangs in a high traffic area of our house and I think of him every time I pass it. So he is in my thoughts every day many times. It was the best thing to visit with him in June. He has some great life stories and loves his kids a great deal. He's proud of all of you.

By stecky on   7/17/2009 5:34 AM

Re: The fight is on...

Hi Becky, I will let him know about the bag and definitely give him your love! You can send it to me here and I'll make sure he gets it. You can email me (pandora at egeekbme.com) and I'll email you the address.

By CBR1000gRRl on   7/17/2009 12:58 PM

Re: The fight is on...

Thank you Wendi for posting this blog. I'm very glad to know that I can get regular updates on your Dad. I talked to Tony this afternoon and he gave me your website. Please let John know that we are sending him lots of good energy. I will call him next week after he gets done with the Chemo. Hopefully he will be feeling a bit better. Please give him a hug for me.

By Gael Fishel on   7/17/2009 3:46 PM

Re: The fight is on...

thank you for the update Wendi. please tell John that Nicole, (fire dancer from the big island) sends him love too! he has always been there for me.

By nic on   7/17/2009 4:01 PM

Re: The fight is on...

Hi Gael and Nicole, thanks for commenting! I showed Dad the blog today with Becky's note and he enjoyed seeing that - I'll do the same with yours tomorrow. :)
In fact - anyone who wants to leave a message for him here, please do so and I'll be sure he sees it!

By CBR1000gRRl on   7/17/2009 6:11 PM

Re: The fight is on...

your father and your family are in our hearts and minds every day - sending our love and let us know if there is anything we can do to help, we are keeping all the positive energy we can flowing...i love your dads stories and sharing his incredible life over the years, thank you for the updates!

By jenniekay on   7/19/2009 9:24 AM

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